3.1 Multidisciplinary input

This service specification has been written by members of the Haemophilia Alliance, a health care/patient partnership established to further the aims and objectives of the haemophilia community. Members of the Haemophilia Alliance are:

The UK Haemophilia Centre Doctors Organisation (UKHCDO)
The UK Haemophilia Society

The UK RCN Haemophilia Nurses Association (UK RCN HNA)

The Haemophilia Chartered Physiotherapists Association (HCPA)
The Clinical Scientists Group
The Institute of Biomedical Science
The Haemophilia Social Workers Group

In addition, an advisory patient group was established to contribute and respond to the specification at all stages of its development. The document was then widely distributed throughout the haemophilia community, as well as to health authorities, regional service commissioning groups and Trusts with Haemophilia Centres, and the specification modified accordingly following feedback.

3.2 Evidence base
Wherever possible, recommendations in the specification are related to formal levels of published evidence (appendix 2)

3.3 Literature searches
Literature searches of MedLine were carried out to identify any existing service specifications or protocols related to the delivery of haemophilia care. The following key words were used:

haemophilia
inherited bleeding disorders

service specification

service framework
protocol