To respond to the complexity
and rarity of haemophilia and related conditions by establishing
appropriate multi-disciplinary health care systems for their
management.
To deliver care in a way that
aims to minimise the pain, incapacity and physical disability
that are characteristic of haemophilia and related conditions.
To ensure that haemophilia care is as
safe as possible, conforms to accepted national standards
and published clinical guidelines and is monitored by objective
external audit.
To be responsive to the life
long medical and psychosocial needs of patients and their families.
To encourage the development
of a holistic approach to patient care, assuring that all patients
have access to a wide range of specialist multi-disciplinary
services.
To encourage an environment
in which patients are able to make informed decisions about
treatment and are enabled to become independent throughout their
lifetime, thereby minimising disruption to education and work.
Wherever possible,
to promote the delivery of haemophilia care within the setting
of the patient’s own community.
